In this webinar, we will share important information for providers regarding an understanding of anticipatory grief and the challenges of parenting a child who is dying, as well as parental bereavement following the death of a child. The webinar will include symptoms of grief, seeking support and normalizing the parents' experience. This will better equip providers to work with patients during this challenging course of care.
Blyth T. Lord, EdM
Founder/Executive Director
Courageous Parents Network
Arlington, Massachusetts
Blyth Lord is the founder and Executive Director of Courageous Parents Network, a nonprofit Web and Mobile platform that empowers parents caring for children with serious illness, including the promotion of pediatric palliative care. Blyth's daughter, Cameron, died of Tay-Sachs disease in 2001. Blyth is also co-chair of the of the AAP’s Section on Hospice and Palliative Medicine’s Parent Advisory Group. Prior to founding Courageous Parents Network, Blyth worked for over 20 years as a television producer, including positions at WGBH in Boston, and ABC News in Washington. She produced the award-winning film, Cameron’s Arc, with the American Academy of Pediatrics to educate doctors in working with families from the time of diagnosis through to the end-of-life. Blyth is currently serving as Board President for the patient disease group National Tay-Sachs and Allied Disease (NTSAD). Blyth received her BA in History from Yale College and has a Master’s in Education from Harvard.
Nancy Frumer Styron, JD, PsyD
Clinical Director
The Children's Room
Arlington, Massachusetts
Nancy Frumer Styron is a licensed psychologist and the Clinical Director of The Children's Room, a bereavement center in Arlington, MA. Nancy comes with a background in pediatric psychology and a specialty in oncology. For over 20 years she has seen patients and their families who have been affected by diagnosis, treatment, loss, and death as she has worked in outpatient services at The Dana-Farber Cancer Institute and at Boston Children’s Hospital. She also served as the Training Director for graduate students in the fields of social work and psychology at Dana-Farber and continues that role at The Children's Room. Nancy has taught graduate students at the Massachusetts School of Professional Psychology in the area of Health Psychology and has a private practice in Lexington, MA. Nancy has been a meditation practitioner for over twenty-five years and has a particular interest in teaching meditation to children along with mindful parenting. Nancy has interests in training in the areas of grief and loss and the importance of leadership in many forms. She holds a BA from the University of Michigan, an MA from Lesley University, a JD from Boston College Law School, and a Psy.D from Massachusetts School of Professional Psychology.
